Men’s Soccer Joins Fight Against Duchenne Muscular Dystrophy
FITCHBURG, Mass. – Honorary Fitchburg State men’s soccer player, twelve-year old Luke Dillon and his family along with the Fitchburg State University men’s soccer team are asking for help to join the fight for more research funds into Duchenne Muscular Dystrophy, a disease which currently has no cure.
Help Falcons find a cure for Duchenne Muscular Dystrophy
FITCHBURG, Mass. – Honorary Fitchburg State men's soccer player, twelve-year old Luke Dillon and his family along with the Fitchburg State University men's soccer team are asking for help to join the fight for more research funds into Duchenne Muscular Dystrophy, a disease which currently has no cure.
We would like to share an email that Fitchburg State men's soccer coach, Werner Thissen received from Luke's family.
Dear Friends,
If you have time today, would you be able to help us raise our voices for Luke and all the other special boys suffering with Duchenne muscular dystrophy by sending a few emails to your members of Congress? We have to keep the "pedal to the metal" keeping the government focused on saving all the boys with Duchenne!
We tend to be selfish on this one. Please help us do everything we can to save our precious boy. Beloved son, precious grandson, sweet nephew, smiling cousin, inspirational friend, and, as Leah would say, "the best brother in the world"!
With sincere thanks and appreciation,
Dawn and Tim
Take Action While Advocates Are Storming the Hill
Many of you have submitted your story to our packet drop off, while others have been waiting for this chance to raise your voice and have it heard across capital hill about why Duchenne matters. We need everyone to take a moment to help ensure the federal government's focus and funding for Duchenne remains a priority.
With the passage of the MD-Care Act last year, now is the time to ensure that the law is fully implemented and funded to the fullest extent possible. Take a minute to contact your members of congress and ask them to sign this official appropriations letter.
This week is Rare Disease Week and over 150 Duchenne Advocates are in Washington, D.C. spreading the message that Duchenne matters and must remain a priority to the government. Please take a minute to re-emphasize our message. Your short email will strengthen the work of your fellow Duchenne advocates storming the hill today.
Click the following link http://www.parentprojectmd.org/takeaction to take action today. For more information regarding Duchenne Muscular Dystrophy please visit http://mda.org/disease/duchenne-muscular-dystrophy.